Marfan Syndrome | Medicues

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Marfan Syndrome | Medicues

medicues.com

' Marfan Syndrome is a genetic disorder affecting the formation of the protein fibrillin. ' Overview Marfan Syndrome is common and affects 1 in 5000

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Tags: Heart Disease, Marfan Syndrome, Genetic, Disease and Condition, Protein

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Most Recently Shared on May 4, 2010 at 1:42 pm By:

medicueshealth health-talk.com

Marfan Syndrome: · Marfan Syndrome is a genetic disorder affecting the formation of the protein fi... http://bit.ly/deFe7Z www.medicues.com

2 years ago...

Danielle - Aurora Heart Transplant Patient - YouTube

youtube.com — “Danielle Sommer, 22, a Marfan syndrome sufferer, received amazing care with the Aurora Transplant...View full resource at youtube.com

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Most Recently Shared on April 10, 2012 at 3:30 pm By:

Aurora_Health Aurora Health Care Healthcare System

#DonateLife Month is a great time to say "yes I will" to being an organ donor. Don't believe us? Ask Danielle. http://t.co/ucSFtmeb

2 weeks ago...

ACP Internist: QD: News Every Day--Marfan syndrome eludes primary care diagnoses

blog.acpinternist.org — “ACP Internist: QD: News Every Day--Marfan syndrome eludes primary care diagnosesView full resource at blog.acpinternist.org

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Most Recently Shared on March 22, 2012 at 11:33 am By:

acpinternist ACP Internist Medical Society

From the blog: QD: News Every Day--Marfan syndrome eludes primary care diagnoses http://t.co/KISrGwDO

1 month ago...

New Study Shows Marfan Syndrome Often Undiagnosed « Touching Base

newsblog.barnesjewish.org — “New Study Shows Marfan Syndrome Often Undiagnosed « Touching BaseView full resource at newsblog.barnesjewish.org

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Most Recently Shared on March 21, 2012 at 4:20 pm By:

BarnesJewish Barnes-Jewish Hospital

A new study by @NMF_Marfan finds Marfan syndrome often goes misdiagnosed by primary care docs. More: http://t.co/A45cEiTV

1 month ago...

My WebMD: Living with Marfan Syndrome

webmd.com — “Though she was told she shouldn't have children because she has a genetic disorder that affects her connective tissue, Maya Brown-Zimmerman gave birth to two. Here's how she is adapting.View full resource at webmd.com

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Most Recently Shared on March 9, 2012 at 8:52 pm By:

Marfan syndrome - Treatment & Care - Children's Hospital Boston

childrenshospital.org — “Marfan syndrome is a genetic disorder that causes connective tissues?which provide substance, shape and support to many parts of the body?to be weaker than they should be. Marfan often weakens the aorta (the blood vessel that carries blood away from the heart to the body), creating the risk of an aortic tear, leak or aneurysm.View full resource at childrenshospital.org

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Most Recently Shared on January 14, 2012 at 7:30 pm By:

ChildrensBoston Children's Hospital Hospital and Children's Hospital

Some kids who have Marfan syndrome need surgery to repair a chest that sinks in (concave) or sticks out (convex): http://t.co/nlzjqODf

3 months ago...

Marfan syndrome - Tests - Children's Hospital Boston

childrenshospital.org — “Marfan syndrome is a genetic disorder that causes connective tissues?which provide substance, shape and support to many parts of the body?to be weaker than they should be. Marfan often weakens the aorta (the blood vessel that carries blood away from the heart to the body), creating the risk of an aortic tear, leak or aneurysm.View full resource at childrenshospital.org

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Most Recently Shared on January 13, 2012 at 7:30 pm By:

ChildrensBoston Children's Hospital Hospital and Children's Hospital

Symptoms of Marfan syndrome don’t usually appear until a child reaches the teen years or even young adulthood: http://t.co/tHCSzPhQ

3 months ago...

Marfan syndrome - Clinical Health Topics - Children's Hospital Boston

childrenshospital.org — “Marfan syndrome is a genetic disorder that causes connective tissues?which provide substance, shape and support to many parts of the body?to be weaker than they should be. Marfan often weakens the aorta (the blood vessel that carries blood away from the heart to the body), creating the risk of an aortic tear, leak or aneurysm.View full resource at childrenshospital.org

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Most Recently Shared on January 12, 2012 at 7:30 pm By:

ChildrensBoston Children's Hospital Hospital and Children's Hospital

Marfan syndrome can weaken a child’s heart, blood vessels, lungs, bones, joints, eyes & skin: http://t.co/Gn7Me1oD

3 months ago...

Marfan syndrome - In-Depth - Children's Hospital Boston

childrenshospital.org — “Marfan syndrome is a genetic disorder that causes connective tissues?which provide substance, shape and support to many parts of the body?to be weaker than they should be. Marfan often weakens the aorta (the blood vessel that carries blood away from the heart to the body), creating the risk of an aortic tear, leak or aneurysm.View full resource at childrenshospital.org

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Most Recently Shared on January 11, 2012 at 7:30 pm By:

ChildrensBoston Children's Hospital Hospital and Children's Hospital

Marfan syndrome is inherited; in about 75% of cases, the defective gene is passed down from parent to child: http://t.co/LRk3OYy3

3 months ago...

Marfan syndrome - Treatment & Care - Children's Hospital Boston

childrenshospital.org — “Marfan syndrome is a genetic disorder that causes connective tissues?which provide substance, shape and support to many parts of the body?to be weaker than they should be. Marfan often weakens the aorta (the blood vessel that carries blood away from the heart to the body), creating the risk of an aortic tear, leak or aneurysm.View full resource at childrenshospital.org

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Most Recently Shared on January 10, 2012 at 7:30 pm By:

ChildrensBoston Children's Hospital Hospital and Children's Hospital

The most serious heart problem linked to Marfan syndrome is aortic dilation—the aorta enlarges & weakens: http://t.co/LJljZMyT

3 months ago...

Marfan syndrome - Clinical Health Topics - Children's Hospital Boston

childrenshospital.org — “Marfan syndrome is a genetic disorder that causes connective tissues?which provide substance, shape and support to many parts of the body?to be weaker than they should be. Marfan often weakens the aorta (the blood vessel that carries blood away from the heart to the body), creating the risk of an aortic tear, leak or aneurysm.View full resource at childrenshospital.org

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Most Recently Shared on January 9, 2012 at 7:30 pm By:

ChildrensBoston Children's Hospital Hospital and Children's Hospital

Marfan syndrome is a genetic disorder that causes the body’s connective tissues to be weaker than normal: http://t.co/FEKqWgVa

3 months ago...

Kids With Genetic Condition Dance | Video - ABC News

abcnews.go.com — “Documentary 'In My Hands' features sufferers of Marfan's syndrome.View full resource at abcnews.go.com

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Most Recently Shared on June 25, 2011 at 12:27 am By:

Health_SS Susan S Health Advocate

Kids With Genetic Condition Dance: Documentary "In My Hands" features sufferers of Marfan's syndrome. http://bit.ly/lnFrgV

10 months ago...

Aurora St. Luke’s Medical Center Opens Specialty Heart Centers

prweb.com — “Centers focus on hypertrophic cardiomyopathy, adult congenital heart disease, Marfan syndrome and valvular heart disease View full resource at prweb.com

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Most Recently Shared on June 7, 2011 at 11:07 pm By:

SpecialtyWisdom OrganizedWisdom OW Health

Aurora St. Luke’s Medical Center Opens Specialty Heart Centers: Centers focus on hypertrophic cardiomyopathy, ad... http://bit.ly/j7Wx6u

11 months ago...

New clues about how to prevent aortic aneurysm in patients with Marfan syndrome

sciencedaily.com — “Scientists whose laboratory studies first suggested that an FDA-approved drug, losartan, might prevent the potentially deadly enlargement of the aorta caused by Marfan syndrome now have an even clearer picture of the cellular signals that contribute to the disease. While a clinical trial testing losartan's ability to slow progression of aneurysm in people with Marfan syndrome continues, ongoing research is generating data that will help guide treatment decisions and inform efforts to develop altView full resource at sciencedaily.com

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Most Recently Shared on April 15, 2011 at 3:23 pm By:

napernurse Dawn McKinney, MS/RN Nurse

New clues about how to prevent aortic aneurysm in patients with #Marfan syndrome http://t.co/SSVbimg via @AddThis #ENDO #research

1 year ago...

Science Magazine: Sign In

sciencemag.org — “Science Magazine: Sign InView full resource at sciencemag.org

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Most Recently Shared on April 15, 2011 at 2:49 pm By:

HopkinsKids Hopkins Children's Hospital and Children's Hospital

Frightening Risk of Marfan Syndrome, and Potential Treatment, Elucidated http://fb.me/LQKAVDoK

1 year ago...

Research Sheds Light On Aortic Aneurysm Growth, Treatment In Marfan Syndrome

medicalnewstoday.com — “The Johns Hopkins researchers who first showed that the commonly used blood pressure drug losartan may help prevent life-threatening aneurysms of the aorta in patients with Marfan syndrome have noView full resource at medicalnewstoday.com

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Most Recently Shared on April 14, 2011 at 10:11 pm By:

HeartsHealth Heart Health Health News

MedicalNewsToday: Research Sheds Light On Aortic Aneurysm Growth, Treatment In Marfan: http://bit.ly/hZBcuq Full http://bit.ly/gstqLV

1 year ago...

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