Recommended Pages at lupusbutterflies.ning.com
Guest Blogger Geoff Thomas Talks about Men and Lupus - BUTTERFLIES AMONG US
lupusbutterflies.ning.com — “Hello My name's Geoff and I'm a statistic.Okay, I'll admit it - I have a problem.Unfortunately no twelve step program's going to help me through this.For a start, I was told I had lupus about eight years ago.Never heard of lupus mustn't be too bad, I said leaving the surgery after being told to take some malaria pills and to stay out of the sun.It was all a little confusing; considering the dermatologist didn't exactly explain there was more than one type of lupus. It took an internet search to ” View full resource at lupusbutterflies.ning.com
Most Recently Shared on June 28, 2010 at 2:56 pm By:
Lisa Gualtieri Health Social Media
Patient blogs but why butterflies? RT @LupusVoice LupusButterflies: Guest Blogger Geoff Thomas on Men & Lupus http://bit.ly/d6ewss
You Did It! - BUTTERFLIES AMONG US
lupusbutterflies.ning.com — “You did it! In just 5 days 5,000 people pledged their commitment to raise awareness of lupus! Let's continue the momentum. Help us reach 10,000 signatures in 2 weeks!The response has been incredible! People from around the world are taking the pledge - including Spain, Argentina, Mexico, Afghanistan, UK, Peru, Argentina, Australia, Portugal, etc. " to do at least one thing this month to raise awareness of lupus.If you haven't already signed the petition, join the band and spread the word.Share w” View full resource at lupusbutterflies.ning.com
Most Recently Shared on May 6, 2010 at 8:06 pm By:
Lupus Foundation Health Organization
Just added a new blog post on BUTTERFLIES AMONG US http://ning.it/cKRM0M
Meet Sean Hanrahan, Your Expert on "Staying Active Despite Lupus," for the May 2010 Q&A - BUTTERFLIES AMONG US
lupusbutterflies.ning.com — “Just like everyone else, people with lupus need to exercise regularly or engage in some kind of movement, and most people with lupus can take part in some form of activity with the knowledge and support of their doctor. For May, the LFA invites you to join us for the Staying Active Despite Lupus Q&A with guest expert Sean Hanrahan. This is your opportunity to ask questions and learn from an expert.Learn more about the Staying Active Despite Lupus Q&A.Submit your questions by May 7.Read p” View full resource at lupusbutterflies.ning.com
Most Recently Shared on May 3, 2010 at 12:31 pm By:
Lupus Foundation Health Organization
Just added a new blog post on BUTTERFLIES AMONG US http://ning.it/dqAsAU
Are You in the Band? Join us for Lupus Awareness Month - BUTTERFLIES AMONG US
lupusbutterflies.ning.com — “It's estimated that 80 percent of the public know little or nothing about lupus. A shocking statistic when you consider the impact lupus has on the lives of 1.5 million Americans and more than five million people worldwide. We hope you'll join us and Band Together for Lupus to raise awareness and educate others about lupus this May during Lupus Awareness Month.More education and awareness of lupus can lead to earlier diagnosis, more resources to help those affected by lupus, and more dollars to ” View full resource at lupusbutterflies.ning.com
Most Recently Shared on April 30, 2010 at 7:27 pm By:
Lupus Foundation Health Organization
Just added a new blog post on BUTTERFLIES AMONG US http://ning.it/cCOIOn
Sign up to Receive LFA's Free Enewsletter - BUTTERFLIES AMONG US
lupusbutterflies.ning.com — “Stay in touch with the latest news from the Lupus Foundation of America (LFA) by signing up to receive the LFA's free enewsletter.” View full resource at lupusbutterflies.ning.com
Most Recently Shared on April 28, 2010 at 1:37 pm By:
Lupus Foundation Health Organization
Just added a new blog post on BUTTERFLIES AMONG US http://ning.it/9hX5Ln
Create a Page of Hope to Honor or Remember Someone with Lupus, or to Fundraise - BUTTERFLIES AMONG US
lupusbutterflies.ning.com — “Honor someone special in the quest for a cure for lupus. Or, celebrate a special event such as your anniversary, wedding, birthday, or turn your run, walk or other activity into a fundraiser for the LFA. It's easy to raise funds to find the causes and the cure for lupus by creating a Page of Hope -- a secure, personal fundraising tool that allows you to create your own fundraising webpage, customized with your photos and your personal message.You can easily customize and build a Page of Hope, th” View full resource at lupusbutterflies.ning.com
Most Recently Shared on April 26, 2010 at 11:41 am By:
Lupus Foundation Health Organization
Just added a new blog post on BUTTERFLIES AMONG US http://ning.it/dgg4Ct
Pain Associated with Lupus - BUTTERFLIES AMONG US
lupusbutterflies.ning.com — “If you are like most people with lupus, you have experienced pain at some time, especially in your joints and muscles, or in the form of headaches. However, the types of pain associated with lupus usually go away when the inflammation and disease activity are brought under control.Learn some approaches to pain relief.And we'd love to hear from you. What works for you?” View full resource at lupusbutterflies.ning.com
Most Recently Shared on April 23, 2010 at 11:42 am By:
Lupus Foundation Health Organization
Just added a new blog post on BUTTERFLIES AMONG US http://ning.it/agF6mJ
Guest Blogger Dr. Barbara Segal talks about what is abnormal fatigue, and what can be done about it - BUTTERFLIES AMONG US
lupusbutterflies.ning.com — “Fatigue that is often severe, persistent and disabling is a common problem for lupus patients. A sense of exhaustion which interferes with normal functioning is an experience that affects as many as 70% of people with lupus. We all appreciate that illness of many types is associated with extreme tiredness. Fatigue is frequently the first symptom of common illnesses such as viral infection.Distressingly, in lupus, often the tiredness persists even when the disease is under control, a fact that ha” View full resource at lupusbutterflies.ning.com
Most Recently Shared on April 21, 2010 at 12:23 pm By:
Lupus Foundation Health Organization
Just added a new blog post on BUTTERFLIES AMONG US http://ning.it/99KPgu
Q&A for Dr. Robert Katz, Your Lupus Expert on Understanding Lupus, Now Available - BUTTERFLIES AMONG US
lupusbutterflies.ning.com — “For April, the LFA invited you to join us for the Understanding Lupus: Open Forum for Questions Q&A with guest expert Dr. Robert Katz. This was your opportunity to ask questions and learn from an expert.Read Dr. Katz's Q&A.Read previous transcripts here.” View full resource at lupusbutterflies.ning.com
Most Recently Shared on April 19, 2010 at 11:41 am By:
Lupus Foundation Health Organization
Just added a new blog post on BUTTERFLIES AMONG US http://ning.it/aJ6S7g
Finding a Rheumatologist - BUTTERFLIES AMONG US
lupusbutterflies.ning.com — “Good morning everyone:Last month, I shared a great resource with you -- prescription medication assistance programs. I received a lot of positive feedback about that, and it got me thinking. What other resources can I highlight for people who are living with lupus?And then I realized there's a very basic one -- how does one find a rheumatologist? As you may know, the rheumatologist is recognized as the specialist who diagnoses and treats lupus. There are several ways to find a rheumatologist. Co” View full resource at lupusbutterflies.ning.com
Most Recently Shared on April 12, 2010 at 11:58 am By:
Lupus Foundation Health Organization
Just added a new blog post on BUTTERFLIES AMONG US http://ning.it/awPtgw
Time Out: Learn how to find balance in your work, home, and social life - BUTTERFLIES AMONG US
lupusbutterflies.ning.com — “By any standard, Tiffany Williams, 26, has a demanding schedule. A senior assistant editor with John Wiley and Sons, she also volunteers with Big Brothers Big Sisters and the American Cancer Society, is active in her church, and sings professionally. Last fall she was involved in an off-Broadway play, and in January, she began teaching an after-school music program. All my life I've been the 'go-to' person, says Williams, of Perth Amboy, NJ. People could call me at the drop of a hat, and I'd be ” View full resource at lupusbutterflies.ning.com
Most Recently Shared on April 9, 2010 at 12:26 pm By:
Lupus Foundation Health Organization
Just added a new blog post on BUTTERFLIES AMONG US http://ning.it/aDU0Gq
Ninth International Lupus Congress to take Place in Vancouver, Canada in June 2010 - BUTTERFLIES AMONG US
lupusbutterflies.ning.com — “The International SLE Congress is a triennial meeting in which patients, physicians and researchers come together to share the latest developments in lupus. The next International Lupus Congress will be held June 24-27, 2010 in Vancouver, Canada. The event's activities will include simultaneous 3-day professional and patient education symposia featuring presentations from more than 60 of the world's top lupus research and outreach experts, and a gala Congress dinner.The LFA is a major sponsor of” View full resource at lupusbutterflies.ning.com
Most Recently Shared on April 7, 2010 at 11:23 am By:
Lupus Foundation Health Organization
Just added a new blog post on BUTTERFLIES AMONG US http://ning.it/b49GkM
Read the Latest in Lupus Research: Earlier Steroid Treatment In Pediatric Lupus Patients Is Related to Higher Risk of Bone Disease - BUTTERFLIES AMONG US
lupusbutterflies.ning.com — “Steroids are frequently used to treat moderate-to-severe lupus flares because they are highly effective and work quickly. However, steroids have many serious side effects, including potentially severe damage to joints or osteonecrosis, which is an interruption of the blood supply to the bone. The researchers hoped to learn whether starting steroids at a younger age is a risk factor for osteonecrosis. The results of this study suggest the possibility that steroids might contribute to a serious bo” View full resource at lupusbutterflies.ning.com
Most Recently Shared on April 5, 2010 at 11:44 am By:
Lupus Foundation Health Organization
Just added a new blog post on BUTTERFLIES AMONG US http://ning.it/ctZMHk
Seeking Parents of Children and Teens with Lupus Nephritis - BUTTERFLIES AMONG US
lupusbutterflies.ning.com — “Is your child or teenager being treated for lupus nephritis? The Lupus Foundation of America (LFA) Education & Research department is gathering information on the short- and long-term side effects and quality of life issues related to lupus nephritis medications -- for example, fertility concerns, hair loss, missing school, or increased risk of infections.If you would be willing to complete a short survey about how lupus nephritis medications have affected your family and your child with” View full resource at lupusbutterflies.ning.com
Most Recently Shared on April 1, 2010 at 11:57 am By:
Lupus Foundation Health Organization
Just added a new blog post on BUTTERFLIES AMONG US http://ning.it/9PN7QA
Meet Dr. Bob Katz, Your Lupus Expert for the April 2010 Q&A - BUTTERFLIES AMONG US
lupusbutterflies.ning.com — “The Lupus Foundation of America (LFA) has revised how it handles webchats. The new format -- now in the form of a Q&A, and no longer a live chat -- will still feature the nation's leading experts in lupus.The LFA invites you to join us for the Understanding Lupus: An Open Forum for Questions Q&A with guest expert Dr. Bob Katz. This is your opportunity to ask questions and learn from an expert.Learn more about the Understanding Lupus: An Open Forum for Questions Q&A.Submit” View full resource at lupusbutterflies.ning.com
Most Recently Shared on March 31, 2010 at 11:41 am By:
Lupus Foundation Health Organization
Just added a new blog post on BUTTERFLIES AMONG US http://ning.it/cpVvvj
