Recommended Pages at e-patients.net

International survey for chronic disease patients | e-Patients.net

e-patients.net — “Doctoral student Mohamed Chekli met SPM member Matthew Katz MD (radiologist), and asked for help with a survey: Would you please put me in touch with people inView full resource at e-patients.net

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Most Recently Shared on May 6, 2012 at 2:52 am By:

ePatientDave Dave deBronkart Patient Advocate

Chronic disease / PHR survey: PhD student invites patient responses. (Pls RT merrily!) http://t.co/IpfDlYgH #S4PM

4 weeks ago...

“With this the AHA admits that it does not know what an EHR was and is meant for” | e-Patients.net

e-patients.net — “Cross-posted from the ICMCC blog, a post by its chairman, Lodewijk Bos, a Dutch cancer patient who is a great advocate for information, technology, and patientView full resource at e-patients.net

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Most Recently Shared on May 4, 2012 at 3:18 pm By:

ePatientDave Dave deBronkart Patient Advocate

Cross-post of powerful @ICMCC post on @AHAHospitals position: "AHA admits it doesn't know what EHR is meant for" http://t.co/1VXhJiKk

4 weeks ago...

The Parable of the Wicked EMR(guest post by David Kibbe) | e-Patients.net

e-patients.net — “Preface by e-Patient Dave: This is a story of bad data gone wild, wrong info that spreads. It starts with a story from the 1600s, which applies all too aptlyView full resource at e-patients.net

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Most Recently Shared on May 3, 2012 at 3:11 pm By:

ePatientDave Dave deBronkart Patient Advocate

Great background reading for the ONC webinar at top of hour: @KibbeDavid's 2009 guest post "The Wicked EMR" http://t.co/ykIj3jbf

4 weeks ago...

Regina Holliday in Newsweek (Shannon Brownlee on hurried docs and lack of care) | e-Patients.net

e-patients.net — “What news to wake up to - SPM's resident artist Regina Holliday is in Newsweek. It's not a happy story - nothing about her story is - but it's good to seeView full resource at e-patients.net

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Most Recently Shared on April 19, 2012 at 12:32 pm By:

“The cancer at the core of evidence-based medicine”: Ben Goldacre on the missing data | e-Patients.net

e-patients.net — “Updates: The text below the video was added later on 4/17, and the graphic was added 4/18. For me the evidence highlight of TEDMED last week was a talk byView full resource at e-patients.net

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Most Recently Shared on April 18, 2012 at 3:51 pm By:

ePatientDave Dave deBronkart Patient Advocate

In a comment on the @BenGoldacre post, @MarilynMann posted links to her own work on this subject http://t.co/4a7y1SqI

1 month ago...

System 1, System 2, Elephants and Illusions | e-Patients.net

e-patients.net — “One of the principal areas to be understood and developed as we expand participatory medicine is decision making. As patients become responsible drivers ofView full resource at e-patients.net

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Most Recently Shared on April 7, 2012 at 4:12 pm By:

“People without medical background can understand if you tell it in a language they understand” | e-Patients.net

e-patients.net — “In the latest post in our Why I Joined SPM series, guest blogger Dr. Nabin Sapkota shares his story of discovering that patients like to be taught what'sView full resource at e-patients.net

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Most Recently Shared on March 24, 2012 at 1:11 pm By:

ePatientDave Dave deBronkart Patient Advocate

New on e-patient blog: @NabinSapkotaMD's Why I Joined #S4PM: "Ppl can understand if u use language they understand" http://t.co/Xho13R64

2 months ago...

Getting copies of your medical records: rule & resource info from CDT | e-Patients.net

e-patients.net — “The Center for Democracy and Technology (CDT) is one of my favorite sources for accurate information on the rules about our rights to access our medicalView full resource at e-patients.net

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Most Recently Shared on March 23, 2012 at 2:43 pm By:

ePatientDave Dave deBronkart Patient Advocate

Hey @KatherineKLeon, for you: Quickie post..summary of @HealthPrivacy's HIPAA rule resources by state! http://t.co/4nfXq4Uc

2 months ago...

SPM member Akiva Zablocki: “Step One to an Informed Decision: Convene an Expert Panel” | e-Patients.net

e-patients.net — “It's terrific that so many members of the Society for Participatory Medicine are contributing guest posts that share their e-patient story or how they came toView full resource at e-patients.net

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Most Recently Shared on March 23, 2012 at 1:23 pm By:

ePatientDave Dave deBronkart Patient Advocate

Powerful new post by #S4PM member @iPatchMan & his "inoperable" brainstem tumor: "Convene An Expert Panel" http://t.co/ElpKjMI6

2 months ago...

The Green Button idea in practice | e-Patients.net

e-patients.net — “E-Patient Dave's post about the Green Button idea generated a lively and substantive discussion in the Comments section. The idea of making it easy for patientsView full resource at e-patients.net

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Most Recently Shared on March 23, 2012 at 11:27 am By:

#firstMRI is a project! Tweetchat tonight | e-Patients.net

e-patients.net — “Remember December's post about the #firstMRI idea, to help poor unsuspecting patients prepare for the monkeys banging on garbage cans experience? It's aView full resource at e-patients.net

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Most Recently Shared on March 21, 2012 at 4:28 pm By:

teaminspire Inspire

MT @s4pm #firstMRI is a project! Tweetchat tonight, 3/21, at 8 ET / 5 PT http://t.co/keimmhd3 #epatient

2 months ago...

Former NEJM editors on the corruption of American medicine (NY Times) | e-Patients.net

e-patients.net — “This is longer than it might be, because this point is essential. If this subject is familiar to you, skip to the heading Today's update. As we said inView full resource at e-patients.net

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Most Recently Shared on March 20, 2012 at 12:18 pm By:

scanman Vijay Doctor, Radiologist, and Physician

Former NEJM editors on the corruption of American medicine (NY Times) http://t.co/gYKHBVXH

2 months ago...

The Government’s Assault on Women’s Health | e-Patients.net

e-patients.net — “I'm a little confused... I'm not sure where the U.S. Constitution guaranteed the government's right to interfere with the doctor/patient relationship. NowhereView full resource at e-patients.net

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Most Recently Shared on March 17, 2012 at 2:54 pm By:

ShelleyWebbRN Shelley Webb Nurse, Eldercare Expert, and Active Health Library

This IS just WOW...and stupid. The Government’s Assault on Women’s Health http://t.co/TQSq875N

3 months ago...

Mama birds: Catherine Fairchild Calhoun and Laurie Strongin | e-Patients.net

e-patients.net — “On February 29, 2012, Rare Disease Day, I hosted a conversation with Catherine Fairchild Calhoun and Laurie Strongin, two people who have inspired me in myView full resource at e-patients.net

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Most Recently Shared on March 16, 2012 at 12:34 pm By:

SusannahFox SusannahFox

New post (podcast!): Mama birds: Catherine Fairchild Calhoun and Laurie Strongin http://t.co/Bw7Ra80S #inspiration

3 months ago...

Michael Millenson: Will health reform move patient-centeredness to center stage? | e-Patients.net

e-patients.net — “Update 12:41 pm: fixed the first link. Michael Millenson, whom we welcomed to SPM in December with his first post here, submits this, about his latestView full resource at e-patients.net

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Most Recently Shared on March 15, 2012 at 4:41 pm By:

ePatientDave Dave deBronkart Patient Advocate

RT @VinceKuraitis: Millenson/RWJF Brief: Will health reform move patient-centeredness to center stage? http://t.co/wjVvWOEo #PCMH #ACO

3 months ago...

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