Tuberous Sclerosis
A brief digest about this topic
Tuberous sclerosis is a rare genetic disease that causes noncancerous tumors to grow in the brain and other organs. Symptoms vary depending on the location of the tumors. Common symptoms include
- Skin problems, such as light patches and thickened skin
- Seizures
- Behavior problems
- Learning disabilities
- Mental retardation
- Kidney problems
Some people have signs of tuberous sclerosis at birth. In others it can take time for the symptoms to develop. In some people the disease is mild, while in others it causes severe disabilities. In rare cases, tumors in vital organs or other symptoms can be life-threatening.
Tuberous sclerosis has no cure, but treatments can help symptoms. Options include medicines, educational and occupational therapy, dermabrasion, and surgery.
NIH: National Institute of Neurological Disorders and Stroke
Provided by: NIH - National Institute of Health
Links shared publicly online about this topic
Tuberous sclerosis - Lenox Hill Hospital
lenoxhillhospital.org — “Tuberous sclerosis - Lenox Hill Hospital” View full resource at lenoxhillhospital.org
Most Recently Shared on May 6, 2010 at 2:05 pm By:
Learn about tuberous sclerosis during Tuberous Sclerosis Awareness Month at: http://cot.ag/c8sFco
Tuberous Sclerosis: eMedicine Dermatology
emedicine.medscape.com — “Overview: Tuberous sclerosis is a genetic disorder affecting cellular differentiation and proliferation, which results in hamartoma formation in many organs (eg, skin, brain, eye, kidney, heart). Von Recklinghausen first described tuberous sclerosis in 1862. Bourneville coined the ...” View full resource at emedicine.medscape.com
Most Recently Shared on April 21, 2010 at 11:21 pm By:
Julie Bohlen Health Executive and Active Health Library
Tuberous sclerosis is a group of 2 genetic disorders affecting the skin, brain/nervous system, kidneys & heart. http://bit.ly/aLyAnb
Tuberous Sclerosis: eMedicine Neurology
emedicine.medscape.com — “Overview: In 1880, Bourneville first described the cerebral manifestations of this disorder, applying the term sclerose tubereuse to indicate the superficial resemblance of the lesions to a potato. In 1908 Vogt set forth the triad of intractable ...” View full resource at emedicine.medscape.com
Most Recently Shared on April 22, 2010 at 6:58 pm By:
Medscape Neurology Neurology and Health Site
Tuberous Sclerosis: http://bit.ly/bD1hXK.
FDA Approval of First Drug to Treat Tuberous Sclerosis Complex
disabled-world.com — “Tuberous Sclerosis Alliance Announces FDA Approval of First Drug to Treat Tuberous Sclerosis Complex” View full resource at disabled-world.com
Most Recently Shared on October 30, 2010 at 5:33 pm By:
Disabled World Health Advocate and Health News
FDA Approval of First Drug to Treat Tuberous Sclerosis Complex http://ff.im/-sUfnV
FDA approves Afinitor drug for tuberous sclerosis complex
news-medical.net — “The Tuberous Sclerosis Alliance (TS Alliance) today announced the first drug approved for a tuberous sclerosis complex (TSC) indication by the Federal Drug Administration (FDA). This drug, manufactured by Novartis Oncology, is called Afinitor and will be used to treat subependymal giant cell astrocytomas (SEGAs) in individuals with TSC.” View full resource at news-medical.net
Most Recently Shared on November 1, 2010 at 6:16 am By:
News-Medical.Net Health News and Oncology
Oncology News: FDA approves Afinitor drug for tuberous sclerosis complex: The Tuberous Sclerosis Alliance (TS Alli... http://bit.ly/ceXube
The TSC eBook: Contribute to the Story
tuberous-sclerosis.com — “The TSC eBook: Contribute to the story. Submit your child's art. Help raise awareness of tuberous sclerosis complex.” View full resource at tuberous-sclerosis.com
Most Recently Shared on May 23, 2011 at 3:00 pm By:
US only: It’s Tuberous Sclerosis Awareness Month; visit http://bit.ly/k6VaeN to learn about a #TSC family project!
Phase 3 Study of Afinitor for Tuberous Sclerosis Complex - ONA
oncologynurseadvisor.com — “Novartis announced results from its Phase 3 EXIST-1 study of Afinitor (everolimus) for the treatment of patients with subependymal giant cell astrocytomas (SEGAs) associated with tuberous sclerosis complex (TSC).” View full resource at oncologynurseadvisor.com
Most Recently Shared on July 8, 2011 at 3:11 pm By:
OncologyNurseAdvisor Oncology, Nursing, Medical Education, and Medical Publisher
Phase 3 Study of Afinitor for Tuberous Sclerosis Complex http://goo.gl/fb/o4VDf
Phase 3 Study of Afinitor for Tuberous Sclerosis Complex - MPR
empr.com — “Novartis announced results from its Phase 3 EXIST-1 study of Afinitor (everolimus) for the treatment of patients with subependymal giant cell astrocytomas (SEGAs) associated with tuberous sclerosis complex (TSC).” View full resource at empr.com
Most Recently Shared on July 8, 2011 at 3:11 pm By:
MPR News: Phase 3 Study of Afinitor for Tuberous Sclerosis Complex: Novartis announced results from its Phase 3 ... http://bit.ly/roAtDP
The Broken Toy: PGD: Tuberous Sclerosis, Fragile X
fertilityauthority.com — “The Broken Toy: PGD: Tuberous Sclerosis, Fragile X” View full resource at fertilityauthority.com
Most Recently Shared on March 5, 2012 at 12:30 pm By:
FertilityAuthority Health Site
The Broken toy ... inspiration for families who may pass on inherited genetic disease. http://t.co/UBJm1U8J Fragile X
The TSC eBook: Contribute to the Story
tuberous-sclerosis.com — “The TSC eBook: Contribute to the story. Submit your child's art. Help raise awareness of tuberous sclerosis complex.” View full resource at tuberous-sclerosis.com
Most Recently Shared on June 6, 2011 at 3:02 pm By:
US only: Your child can be a part of an educational #TSC eBook! Visit http://bit.ly/k6VaeN to learn more
The TSC eBook: Contribute to the Story
tuberous-sclerosis.com — “The TSC eBook: Contribute to the story. Submit your child's art. Help raise awareness of tuberous sclerosis complex.” View full resource at tuberous-sclerosis.com
Most Recently Shared on May 30, 2011 at 6:51 am By:
US only: Encourage your child to be a part of an educational #TSC eBook. Learn more at http://bit.ly/k6VaeN
The TSC eBook: Contribute to the Story
tuberous-sclerosis.com — “The TSC eBook: Contribute to the story. Submit your child's art. Help raise awareness of tuberous sclerosis complex.” View full resource at tuberous-sclerosis.com
Most Recently Shared on June 13, 2011 at 6:02 pm By:
US only: Parents of children with #TSC: Help your kids submit artwork for an eBook at http://bit.ly/k6VaeN
TSC, Tuberous Sclerosis Complex, TSC Patients
tuberous-sclerosis.com — “FacingTSC.com provides key information about tuberous sclerosis complex (TSC) in infants through adults.” View full resource at tuberous-sclerosis.com
Most Recently Shared on January 6, 2012 at 5:00 pm By:
US only: Visit http://t.co/38JoCSol to read about Turbo and Scott’s adventures in an educational children’s book #TSC
TSC, Tuberous Sclerosis Complex, TSC Patients
tuberous-sclerosis.com — “FacingTSC.com provides key information about tuberous sclerosis complex (TSC) in infants through adults.” View full resource at tuberous-sclerosis.com
Most Recently Shared on January 4, 2012 at 5:00 pm By:
US only: What are you #reading with your kids tonight? Visit http://t.co/38JoCSol to download an educational children’s book about #TSC
Afinitor For Benign Brain Tumor Associated With Tuberous Sclerosis Approved By FDA
medicalnewstoday.com — “Afinitor (everolimus) in tablet form, a first line drug for the treatment of adults and children with benign brain tumor associated with tuberous sclerosis has been approved by the Food and Drug A” View full resource at medicalnewstoday.com
Most Recently Shared on October 31, 2010 at 6:05 pm By:
Afinitor For Benign Brain Tumor Associated With Tuberous Sclerosis Approved By FDA Afinitor (everolimus) in tablet form.. http://dld.bz/4vhr
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Related WisdomCards
Featuring the top 3 experts for this topic
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Lenox Hill Hospital
Lenox Hill Hospital is 652-bed hospital located on Manhattan's Upper East Side, providing innovative, world-class care for over 150 years.
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Julie Bohlen
Health content professional with MBA in heathcare management. Sharing quality health resources and news. On executive team at OrganizedWisdom.
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Medscape Neurology
News, full text journal articles, clinical reference, expert commentary & community features vital for todays neurology
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