Tension Headache Foundations and Support Groups

Featuring the top 3 experts for this topic

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  Alicia C. Staley

  CANCER SURVIVOR X3, Director of my own non-profit, chief survivor, getting my golf groove back.... POWER TWEETER and eternal optimist

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  Alicia C. Staley

  CANCER SURVIVOR X3, Director of my own non-profit, chief survivor, getting my golf groove back.... POWER TWEETER and eternal optimist

  View Profile

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  Nancy Harris Bonk

  
  Nancy Harris Bonk is a patient advocate and educator who has been helping patients empower themselves to take an active role in their health care since 2003. Nancy experienced what she now knows were menstrually related Migraines during puberty. Nancy was able to manage these with over the counter medications for many years. On a cloudy December 9 morning in 1996, Nancy’s life changed forever. She slipped and fell on a patch of black ice in her driveway, hitting her head, hard. She had sustained a traumatic brain injury or TBI.  
  In addition to daily chronic head and neck pain and having Migraine disease, Nancy lives with idiopathic intracranial hypertension, a cervical spine fusion, depression, hypothyroidism, Raynaud’s phenomenon, Sjogren’s syndrome and some autoimmune connective tissue disease. In tremendous pain and still experiencing cognitive symptoms, Nancy went online to see  if she could find some answers. Reaching out to a number of online support groups, she met patient advocate Teri Robert who at the time was the Headache and Migraine Guide at About.com. Nancy became an active member of the discussion forum, and in 2005, she became a moderator under Teri’s tutelage and guidance. In 2007, Nancy joined HealthCentral’s Migraine Community as an Expert and Community Manager.
  Because Nancy didn’t think of herself as being disabled, it never occurred to her to file for Social Security Disability, SSDI. Before she applied for SSDI, she wanted to make certain she was truly disabled. To convince herself, she took a part-time job, which threw her into pain cycle that took weeks to break. When the judge declared her “fully disabled” it wasn’t necessarily a happy moment, just a necessary step in moving forward.
  In April of 2011, in conjunction with the National Headache Foundation, Nancy started the first, local support group for Migraine and headache sufferers in Western New York - the Western New York Migraine and Headache Disorder Support Group. Nancy continues to read, research and attend medical conferences to remain current in Migraine and headache disorders. Nancy has also earned continuing education hours in this area from the American Headache Society, the Annenberg Center for Health Sciences and the Center for Health Care Education, the Penn State College of Medicine and the Primary Care Network.
  Supporting people with Migraine and headache disorders is a privilege and honor for Nancy. She feels support, compassion and understanding are vital components in health care. Nancy lives in Western New York with her 16-year-old son Sam, a junior in high school. 

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