Sjogren's Syndrome and Joint Pain
Links shared publicly online about this topic
Go Dairy Free | Joint Pain (Sjogren's) & Milk
godairyfree.org — “Tiffany ~ I was diagnosed with Sjogren's Syndrome (autoimmune disease that causes dry eyes, dry mouth, joint stiffness/pain) and Celiac disease (gl...” View full resource at godairyfree.org
Most Recently Shared on May 15, 2009 at 4:54 am By:
Migraine disease and Sjogren's Syndrome - Migraine
healthcentral.com — “During a Migraine attack, various part of a patient's body can succumb to many different symptoms. These symptoms I experience are head and cervical spine pain,...” View full resource at healthcentral.com
Most Recently Shared on April 22, 2011 at 1:29 am By:
Migraine Disease and Sjogrens Syndrome http://www.healthcentral.com/migraine/c/202/136573/migraine-syndrome
Sjogren's Syndrome: Venus Williams withdraws from US Open | Mail Online
dailymail.co.uk — “The seven-time Grand Slam winner has Sjogren's syndrome, an auto-immune disease which affects production of tears and saliva and causes joint pain.” View full resource at dailymail.co.uk
Most Recently Shared on September 1, 2011 at 12:56 pm By:
#Venus #Williams sidelined by #autoimmune #disorder, Sjogren's Syndrome. http://t.co/ZPDp0aw
What Is Sjogren's Syndrome? Venus Williams Fights Illness - - TIME Healthland
healthland.time.com — “Tennis star Venus Williams withdrew from the U.S. Open on Wednesday, citing a diagnosis of Sjögren's syndrome, a little-known autoimmune disorder that causes fatigue and joint pain. TIME Healthland asked Dr.” View full resource at healthland.time.com
Most Recently Shared on September 1, 2011 at 5:35 pm By:
An expert explains Sjögren's Syndrome -- the autoimmune disorder affecting Venus Williams | http://t.co/mmf8zEh
What Is Sjogren's Syndrome? Venus Williams Fights Illness - - TIME Healthland
healthland.time.com — “Tennis star Venus Williams withdrew from the U.S. Open on Wednesday, citing a diagnosis of Sjögren's syndrome, a little-known autoimmune disorder that causes fatigue and joint pain. TIME Healthland asked Dr.” View full resource at healthland.time.com
Most Recently Shared on September 2, 2011 at 7:17 pm By:
What Is Sjögren's Syndrome? An Expert Explains Venus Williams' Diagnosis http://t.co/7j2Qvxn
Rheumatology Medical News about Sjogren's Syndrome Lipoproteins
mdlinx.com — “Is there a link between inflammation and abnormal lipoprotein profile in Sjogren's syndrome?” View full resource at mdlinx.com
Most Recently Shared on May 28, 2010 at 10:44 am By:
Is there a link between inflammation and abnormal lipoprotein profile in Sjogren's syndrome?: Joint, ... http://bit.ly/9BXl2R #Rheumatology
-The Pain Center - Get Back Into Life | Venus Williams and Sjogren's Syndrome
thepaincenter.com — “Sjogren’s syndrome, like many other autoimmune conditions, affects more women than men, but statistically affects those over the age of 40. Venus Williams is just 31-years-old.” View full resource at thepaincenter.com
Most Recently Shared on September 2, 2011 at 5:28 pm By:
http://ow.ly/6k2QK Even female athletes cannot escape these autoimmune diseases. #spoonie #sjogren's
What Venus Williams' Sjogren's Syndrome Diagnosis Means for Her Health - Autoimmune Disorders Center - Everyday Health
everydayhealth.com — “Venus Williams withdrew from the US Open tennis tournament and revealed she has Sjogren's syndrome, an autoimmune disease that causes joint pain.” View full resource at everydayhealth.com
Most Recently Shared on September 1, 2011 at 5:00 pm By:
Venus Williams opens up about the disease that forced her to withdraw from @usopen: http://ow.ly/6iY4n
Sjogren's syndrome: Can it cause recurrent UTIs? - MayoClinic.com
mayoclinic.com — “Sjogren's syndrome isn't thought to cause UTIs, but it may cause other urinary conditions.” View full resource at mayoclinic.com
Most Recently Shared on August 12, 2010 at 2:20 am By:
Sjogren's syndrome: Can it cause recurrent UTIs?: Sjogren's syndrome isn't thought to cause UTIs, but it may cause... http://bit.ly/9GL1kt
How Dry I Am: Day-to-Day Life With Sjogren's Syndrome - Chronic Pain Blog
everydayhealth.com — “Many of us who live with autoimmune diseases wonder how many different ones we can have. Sometimes they seem to be piling up on us in a world in which one usually has one disease, we can have several.” View full resource at everydayhealth.com
Most Recently Shared on September 2, 2011 at 3:00 pm By:
A real-life glimpse at the autoimmune disease that Venus Williams has: http://ow.ly/6jeSX
Why Sjogren's syndrome caused Williams to quit U.S. open - USATODAY.com
yourlife.usatoday.com — “Sjogren's syndrome is an autoimmune disorder that can cause serious arthritic pain.” View full resource at yourlife.usatoday.com
Most Recently Shared on September 2, 2011 at 1:33 am By:
Why Sjogren's syndrome caused Williams to quit U.S. open http://t.co/LoxUAhj
Why Sjogren's syndrome caused Williams to quit U.S. open - USATODAY.com
yourlife.usatoday.com — “Sjogren's syndrome is an autoimmune disorder that can cause serious arthritic pain.” View full resource at yourlife.usatoday.com
Most Recently Shared on September 1, 2011 at 6:15 pm By:
Why Sjogren's syndrome caused Williams to quit U.S. open http://t.co/ywHAiUX
Patient Voices: Sjogren’s Syndrome - Interactive Feature - NYTimes.com
nytimes.com — “Severe dry eyes, joint pain and chronic fatigue: five men and women speak about living with Sjogren’s syndrome.” View full resource at nytimes.com
Most Recently Shared on September 16, 2011 at 11:33 am By:
Sheryl Aronson: The Mindfulness Solution to Pain
sherylaronson.blogspot.com — “This blog is about health and healing. I will share my life with chronic illness, pain and fatigue of Sjogren's Syndrome and fibromyalgia. Most of all, I will write about living life and coping, using art and other means.” View full resource at sherylaronson.blogspot.com
Most Recently Shared on January 3, 2011 at 7:06 am By:
Sheryl Aronson: The Mindfulness Solution to Pain http://bit.ly/gQ0aDo #mindfulness
Shedding Light On Aromatase Inhibitor Joint Pain Syndrome
medicalnewstoday.com — “Breast cancer patients are more likely to have joint pain from taking aromatase inhibitors (AIs) if they have advanced stage cancer, according to a study presented at the American College of Rheum” View full resource at medicalnewstoday.com
Most Recently Shared on November 10, 2010 at 12:46 pm By:
Shedding Light On Aromatase Inhibitor Joint Pain Syndrome http://mnt.to/3Mj9 #arthritis
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Featuring the top 3 experts for this topic
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Alisa Fleming
Freelance writer, food lover, author of Go Dairy Free: The Guide and Cookbook, founder of GoDairyFree.org, blogger at OneFrugalFoodie.com
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Nancy Harris Bonk
Nancy Harris Bonk is a patient advocate and educator who has been helping patients empower themselves to take an active role in their health care since 2003. Nancy experienced what she now knows were menstrually related Migraines during puberty. Nancy was able to manage these with over the counter medications for many years. On a cloudy December 9 morning in 1996, Nancy’s life changed forever. She slipped and fell on a patch of black ice in her driveway, hitting her head, hard. She had sustained a traumatic brain injury or TBI.
In addition to daily chronic head and neck pain and having Migraine disease, Nancy lives with idiopathic intracranial hypertension, a cervical spine fusion, depression, hypothyroidism, Raynaud’s phenomenon, Sjogren’s syndrome and some autoimmune connective tissue disease. In tremendous pain and still experiencing cognitive symptoms, Nancy went online to see if she could find some answers. Reaching out to a number of online support groups, she met patient advocate Teri Robert who at the time was the Headache and Migraine Guide at About.com. Nancy became an active member of the discussion forum, and in 2005, she became a moderator under Teri’s tutelage and guidance. In 2007, Nancy joined HealthCentral’s Migraine Community as an Expert and Community Manager.
Because Nancy didn’t think of herself as being disabled, it never occurred to her to file for Social Security Disability, SSDI. Before she applied for SSDI, she wanted to make certain she was truly disabled. To convince herself, she took a part-time job, which threw her into pain cycle that took weeks to break. When the judge declared her “fully disabled” it wasn’t necessarily a happy moment, just a necessary step in moving forward.
In April of 2011, in conjunction with the National Headache Foundation, Nancy started the first, local support group for Migraine and headache sufferers in Western New York - the Western New York Migraine and Headache Disorder Support Group. Nancy continues to read, research and attend medical conferences to remain current in Migraine and headache disorders. Nancy has also earned continuing education hours in this area from the American Headache Society, the Annenberg Center for Health Sciences and the Center for Health Care Education, the Penn State College of Medicine and the Primary Care Network.
Supporting people with Migraine and headache disorders is a privilege and honor for Nancy. She feels support, compassion and understanding are vital components in health care. Nancy lives in Western New York with her 16-year-old son Sam, a junior in high school. -
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