Sjogren's Syndrome and Chronic Pain
Links shared publicly online about this topic
How Dry I Am: Day-to-Day Life With Sjogren's Syndrome - Chronic Pain Blog
everydayhealth.com — “Many of us who live with autoimmune diseases wonder how many different ones we can have. Sometimes they seem to be piling up on us in a world in which one usually has one disease, we can have several.” View full resource at everydayhealth.com
Most Recently Shared on September 2, 2011 at 3:00 pm By:
A real-life glimpse at the autoimmune disease that Venus Williams has: http://ow.ly/6jeSX
Sjogren's Syndrome in Fibromyalgia & Chronic Fatigue Syndrome
chronicfatigue.about.com — “Sjogren's Syndrome in Fibromyalgia & Chronic Fatigue Syndrome” View full resource at chronicfatigue.about.com
Most Recently Shared on September 10, 2011 at 10:52 am By:
Sjogren's Syndrome in Fibromyalgia & Chronic Fatigue Syndrome - About - News & Issues http://t.co/3f4Fgw4
Migraine disease and Sjogren's Syndrome - Migraine
healthcentral.com — “During a Migraine attack, various part of a patient's body can succumb to many different symptoms. These symptoms I experience are head and cervical spine pain,...” View full resource at healthcentral.com
Most Recently Shared on April 22, 2011 at 1:29 am By:
Nancy Harris Bonk Patient Expert and Health Executive
Migraine Disease and Sjogrens Syndrome http://www.healthcentral.com/migraine/c/202/136573/migraine-syndrome
Sjogren Syndrome: eMedicine Emergency Medicine
emedicine.medscape.com — “Overview: Sjogren syndrome is a chronic autoimmune disorder characterized by xerostomia (dry mouth), xerophthalmia (dry eyes), and lymphocytic infiltration of the exocrine glands. This triad is also known as the sicca complex. Sjogren syndrome displays a wide ...” View full resource at emedicine.medscape.com
Most Recently Shared on April 30, 2010 at 4:29 am By:
Sjögren syndrome is a chronic autoimmune disorder causing dry mouth and eyes and involves the exocrine glands. http://bit.ly/aIOzOz
Sjogren Syndrome: eMedicine Rheumatology
emedicine.medscape.com — “Overview: Sjogren syndrome (SS) is a systemic chronic inflammatory disorder characterized by lymphocytic infiltrates in exocrine organs. Most individuals with Sjogren syndrome present with sicca symptoms, such as xerophthalmia (dry eyes), xerostomia (dry mouth), and parotid gland ...” View full resource at emedicine.medscape.com
Most Recently Shared on June 14, 2010 at 4:26 pm By:
New study of rituximab in primary Sjogren Syndrome. See the eMedicine topic Sjogren Syndrome. http://bit.ly/cAhVNM
Sjogren Syndrome: eMedicine Dermatology
emedicine.medscape.com — “Overview: Sjogren syndrome (SS) is a chronic systemic disorder characterized by polyglandular tissue destruction that causes keratoconjunctivitis sicca (KCS) and xerostomia. Patients with primary Sjogren syndrome have keratoconjunctivitis sicca and xerostomia, whereas those with secondary Sjogren syndrome ...” View full resource at emedicine.medscape.com
Most Recently Shared on April 18, 2010 at 6:53 pm By:
Two common symptoms of Sjögren syndrome include dry eyes and mouth. Learn more about the symptoms and causes. http://bit.ly/9FPZKL
-The Pain Center - Get Back Into Life | Venus Williams and Sjogren's Syndrome
thepaincenter.com — “Sjogren’s syndrome, like many other autoimmune conditions, affects more women than men, but statistically affects those over the age of 40. Venus Williams is just 31-years-old.” View full resource at thepaincenter.com
Most Recently Shared on September 2, 2011 at 5:28 pm By:
Pain Center of AZ Physician Group
http://ow.ly/6k2QK Even female athletes cannot escape these autoimmune diseases. #spoonie #sjogren's
Rheumatology Article | Hepatitis B Sjogren's Syndrome
mdlinx.com — “Clinical significance of chronic hepatitis B virus infection in patients with primary Sjögrens syndrome” View full resource at mdlinx.com
Most Recently Shared on August 10, 2011 at 11:10 am By:
Sandeep Pulim MD Doctor, Health Communicator, and Physician
Clinical significance of chronic hepatitis B virus infection in patients with primary Sjögrens syn... http://bit.ly/o9YfPF #Rheumatology
Sjogren's Syndrome Awareness Month | Novel Patient
novelpatient.com — “April is Sjogren's Syndrome Awareness Month. It is a chronic autoimmune disease in which people’s white blood cells attack their moisture-producing glands.” View full resource at novelpatient.com
Most Recently Shared on April 20, 2011 at 11:18 am By:
Nancy Harris Bonk Patient Expert and Health Executive
Sjogren's Syndrome Awareness Month | Novel Patient http://bit.ly/dPgKCb
Go Dairy Free | Joint Pain (Sjogren's) & Milk
godairyfree.org — “Tiffany ~ I was diagnosed with Sjogren's Syndrome (autoimmune disease that causes dry eyes, dry mouth, joint stiffness/pain) and Celiac disease (gl...” View full resource at godairyfree.org
Most Recently Shared on May 15, 2009 at 4:54 am By:
Alisa Fleming Healthy Eating Advisor
Joint Pain (Sjogren's) & Milk http://tinyurl.com/qf7sv5
The Voices of Sjogren's Syndrome - NYTimes.com
well.blogs.nytimes.com — “Most people probably never heard of Sjogren's syndrome until Venus Williams announced she suffered from the condition. But an estimated four million Americans have Sjogren's, making it one of the most prevalent autoimmune disorders.” View full resource at well.blogs.nytimes.com
Most Recently Shared on September 16, 2011 at 4:00 am By:
Well Blog: The Voices of Sjogren's Syndrome: Most people probably never heard of Sjogren's syndrome until Venus... http://t.co/zXMJpeeE
Sjogren's Syndrome: Venus Williams withdraws from US Open | Mail Online
dailymail.co.uk — “The seven-time Grand Slam winner has Sjogren's syndrome, an auto-immune disease which affects production of tears and saliva and causes joint pain.” View full resource at dailymail.co.uk
Most Recently Shared on September 1, 2011 at 12:56 pm By:
The Kidney Group Physician Group and Nephrology
#Venus #Williams sidelined by #autoimmune #disorder, Sjogren's Syndrome. http://t.co/ZPDp0aw
What Is Sjogren's Syndrome? Venus Williams Fights Illness - - TIME Healthland
healthland.time.com — “Tennis star Venus Williams withdrew from the U.S. Open on Wednesday, citing a diagnosis of Sjögren's syndrome, a little-known autoimmune disorder that causes fatigue and joint pain. TIME Healthland asked Dr.” View full resource at healthland.time.com
Most Recently Shared on September 1, 2011 at 5:35 pm By:
An expert explains Sjögren's Syndrome -- the autoimmune disorder affecting Venus Williams | http://t.co/mmf8zEh
What Is Sjogren's Syndrome? Venus Williams Fights Illness - - TIME Healthland
healthland.time.com — “Tennis star Venus Williams withdrew from the U.S. Open on Wednesday, citing a diagnosis of Sjögren's syndrome, a little-known autoimmune disorder that causes fatigue and joint pain. TIME Healthland asked Dr.” View full resource at healthland.time.com
Most Recently Shared on September 2, 2011 at 7:17 pm By:
What Is Sjögren's Syndrome? An Expert Explains Venus Williams' Diagnosis http://t.co/7j2Qvxn
What Venus Williams' Sjogren's Syndrome Diagnosis Means for Her Health - Autoimmune Disorders Center - Everyday Health
everydayhealth.com — “Venus Williams withdrew from the US Open tennis tournament and revealed she has Sjogren's syndrome, an autoimmune disease that causes joint pain.” View full resource at everydayhealth.com
Most Recently Shared on September 1, 2011 at 5:00 pm By:
Venus Williams opens up about the disease that forced her to withdraw from @usopen: http://ow.ly/6iY4n
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Featuring the top 3 experts for this topic
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Everyday Health
Everyday Health inspires your health goals and supports your progress through expert guidance and breaking health news. Tweets managed by @anniehauser
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Gina Selir
I am the author of the Fibromyalgia Natural Program and I am available to answer any question you may have about fibro.
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Nancy Harris Bonk
Nancy Harris Bonk is a patient advocate and educator who has been helping patients empower themselves to take an active role in their health care since 2003. Nancy experienced what she now knows were menstrually related Migraines during puberty. Nancy was able to manage these with over the counter medications for many years. On a cloudy December 9 morning in 1996, Nancy’s life changed forever. She slipped and fell on a patch of black ice in her driveway, hitting her head, hard. She had sustained a traumatic brain injury or TBI.
In addition to daily chronic head and neck pain and having Migraine disease, Nancy lives with idiopathic intracranial hypertension, a cervical spine fusion, depression, hypothyroidism, Raynaud’s phenomenon, Sjogren’s syndrome and some autoimmune connective tissue disease. In tremendous pain and still experiencing cognitive symptoms, Nancy went online to see if she could find some answers. Reaching out to a number of online support groups, she met patient advocate Teri Robert who at the time was the Headache and Migraine Guide at About.com. Nancy became an active member of the discussion forum, and in 2005, she became a moderator under Teri’s tutelage and guidance. In 2007, Nancy joined HealthCentral’s Migraine Community as an Expert and Community Manager.
Because Nancy didn’t think of herself as being disabled, it never occurred to her to file for Social Security Disability, SSDI. Before she applied for SSDI, she wanted to make certain she was truly disabled. To convince herself, she took a part-time job, which threw her into pain cycle that took weeks to break. When the judge declared her “fully disabled” it wasn’t necessarily a happy moment, just a necessary step in moving forward.
In April of 2011, in conjunction with the National Headache Foundation, Nancy started the first, local support group for Migraine and headache sufferers in Western New York - the Western New York Migraine and Headache Disorder Support Group. Nancy continues to read, research and attend medical conferences to remain current in Migraine and headache disorders. Nancy has also earned continuing education hours in this area from the American Headache Society, the Annenberg Center for Health Sciences and the Center for Health Care Education, the Penn State College of Medicine and the Primary Care Network.
Supporting people with Migraine and headache disorders is a privilege and honor for Nancy. She feels support, compassion and understanding are vital components in health care. Nancy lives in Western New York with her 16-year-old son Sam, a junior in high school.
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