Paroxysmal Nocturnal Dyspnea
Links shared publicly online about this topic
AA&MDSIF - Aplastic Anemia & MDS (Myelodysplastic Syndromes), PNH (Paroxysmal Nocturnal Hemoglobinuria)
aamds.org — “Aplastic Anemia & MDS (Myelodysplastic Syndromes, Paroxysmal Nocturnal Hemoglobinuria, PNH) International Foundation is the oldest and largest patient advocate and support organization for bone marrow diseases, providing life-saving hope, knowledge, and support to hundreds of thousands of patients and their families around the world. We are your partners in care. We offer you the expertise of our distinguished global team of medical experts, scientific researchers, doctors, nurses, counselors, i” View full resource at aamds.org
Most Recently Shared on December 2, 2009 at 2:45 pm By:
Dec. 1-7 is National Aplastic Anemia & MDS Awareness Week | http://www.aamds.org/aplastic/
AA&MDSIF - Aplastic Anemia & MDS (Myelodysplastic Syndromes), PNH (Paroxysmal Nocturnal Hemoglobinuria)
aamds.org — “Aplastic Anemia & MDS (Myelodysplastic Syndromes, Paroxysmal Nocturnal Hemoglobinuria, PNH) International Foundation is the oldest and largest patient advocate and support organization for bone marrow diseases, providing life-saving hope, knowledge, and support to hundreds of thousands of patients and their families around the world. We are your partners in care. We offer you the expertise of our distinguished global team of medical experts, scientific researchers, doctors, nurses, counselors, i” View full resource at aamds.org
Most Recently Shared on December 4, 2009 at 6:47 pm By:
It's National Aplastic Anemia and MDS Awareness Week: Learn how you can help fight bone marrow failure diseases http://aamds.org #health
Congestive Heart Failure Patient Guide
healthcentral.com — “Congestive heart failure and heart disease. Find out how congestive heart failure is diagnosed and what it is.” View full resource at healthcentral.com
Most Recently Shared on December 16, 2009 at 7:01 pm By:
Dr Richardson Doctor, Family Medicine Doctor, and Physician
Congestive #Heart Failure: A Patient Guide http://short.to/10mi3 lifestyle changes are very important
Hyperbilirubinemia, Unconjugated: eMedicine Gastroenterology
emedicine.medscape.com — “Overview: Increased production of bilirubinHemolysis generally induces a modest elevation in plasma levels of unconjugated bilirubin (1-4 mg/dL). During acute hemolytic crises, such as those occurring in sickle cell disease or paroxysmal nocturnal hemoglobinuria, bilirubin production and ...” View full resource at emedicine.medscape.com
Most Recently Shared on June 2, 2010 at 7:24 pm By:
Susan Scroggins Active Health Library and Health Advocate
Unconjugated hyperbilirubinemia can be caused by a variety of conditions and lead to serious problems. Learn more. http://bit.ly/artIbp
Researchers To Present Additional Data On Soliris(R) (eculizumab) For The Treatment Of Patients With PNH At The ASH Annual Meeting
medicalnewstoday.com — “Alexion Pharmaceuticals, Inc. (Nasdaq: ALXN) announced that researchers are scheduled to present data relating to Soliris® (eculizumab) as a treatment for patients with paroxysmal nocturnal he” View full resource at medicalnewstoday.com
Most Recently Shared on November 12, 2009 at 9:25 am By:
#HEALTH Researchers To Present Additional Data On Soliris(R) (eculizumab) For The Treatment Of Patients With PNH At... http://ow.ly/161aeV
Sleep Disorders Community - Medpedia
medpedia.com — “This community is for patients, students, caregivers, medical professionals, researchers, and anyone interested in learning more about sleep disorders, insomnia, sleep apnea, nar colepsy...” View full resource at medpedia.com
Most Recently Shared on November 10, 2009 at 1:17 am By:
The Medpedia Project Health Site
@doctorpark Welcome to the Sleep Disorders Community on Medpedia! http://bit.ly/1TeRvS
Sleep Disorders Community - Medpedia
medpedia.com — “This community is for patients, students, caregivers, medical professionals, researchers, and anyone interested in learning more about sleep disorders, insomnia, sleep apnea, nar colepsy...” View full resource at medpedia.com
Most Recently Shared on September 17, 2009 at 11:56 pm By:
The Medpedia Project Health Site
Learn more about sleep disorders, insomnia, sleep apnea, narcolepsy, snoring, etc http://bit.ly/3nAzWw
New analysis evaluates association between hemolysis, mortality in patients with PNH
news-medical.net — “Alexion Pharmaceuticals, Inc. today announced the presentation of an analysis from the National Data Registry in South Korea that evaluated the association between hemolysis and mortality in patients with paroxysmal nocturnal hemoglobinuria.” View full resource at news-medical.net
Most Recently Shared on December 7, 2010 at 6:21 am By:
New analysis evaluates association between hemolysis, mortality in patients with PNH: Alexion Pharmaceuticals, I... http://bit.ly/g3xIP0
PNH patients applaud pan-Canadian approach to providing equitable access to Soliris
news-medical.net — “The Canadian Association of PNH Patients applauds governments across Canada for their landmark agreement to provide public access to Soliris (eculizumab), a life-saving treatment for the ultra-rare blood disease known as paroxysmal nocturnal haemoglobinuria.” View full resource at news-medical.net
Most Recently Shared on July 25, 2011 at 5:59 am By:
PNH patients applaud pan-Canadian approach to providing equitable access to Soliris: The Canadian Association of... http://bit.ly/o140lt
Researchers Edit Genes in Human Stem Cells
newswise.com — “Researchers at the Johns Hopkins School of Medicine have successfully edited the genome of human- induced pluripotent stem cells, making possible the future development of patient-specific stem cell therapies. Reporting this week in Cell Stem Cell, the team altered a gene responsible for causing the rare blood disease paroxysmal nocturnal hemoglobinuria, or PNH, establishing for the first time a useful system to learn more about the disease.” View full resource at newswise.com
Most Recently Shared on June 18, 2009 at 5:54 pm By:
Researchers Edit Genes in Human Stem Cells http://bit.ly/11MZYg
All Canadian provinces except Quebec announce funding agreement for PNH drug, Soliris
news-medical.net — “L'Association Québécoise de l'HPN regrets that Quebec remains one of the only jurisdictions in the developed world to decline including the only effective life-saving treatment against an ultra-rare blood disease - paroxysmal nocturnal hemoglobinuria (PNH) - on its public drug insurance plan drugs list.” View full resource at news-medical.net
Most Recently Shared on July 28, 2011 at 1:03 pm By:
All Canadian provinces except Quebec announce funding agreement for PNH drug, Soliris: L'Association Québécoise ... http://bit.ly/n4fZ6b
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Featuring the top 3 experts for this topic
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SoutheastHEALTH
SoutheastHEALTH is a network of providers including Southeast Hospital, which provides a system of healthcare services throughout a multi-state region.
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Maureen Linke
USA TODAY Your Life, including news on health, fitness, food, parenting, family, pets, aging, sex, relationships, self-improvement and body image (web producer)
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Dr Richardson
Patient Handbook to Medical Care by J. L. Richardson MD, Medical Doctors & Data for YOU (MD4U)
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