Hemophilia Support Groups
Links shared publicly online about this topic
Boston Hemophilia Center | Facebook
facebook.com — “Boston Hemophilia Center - As a federally funded hemophilia treatment center, the Boston Hemophilia Center provides comprehensive care to people with hemophilia and other bleeding disorders. - General Information: The Boston Hemophilia Center is a combined program of Children's Hospital Boston and Brigham and Women's Hospital. We care for more than 400 children and adults with congenital bleeding disorders. - Mission: To postitively impact the health, life-style and long-term well-bein” View full resource at facebook.com
Most Recently Shared on March 14, 2012 at 7:30 pm By:
Children's Hospital Hospital and Children's Hospital
Show your support! Join our Boston Hemophilia Center page on Facebook: http://t.co/2iWBFlpn
Pediatric Hemophilia - Symptoms, Tests, Treatment
childrenshospital.org — “Hemophilia is a blood clotting problem in which a simple cut can cause uncontrollable bleeding because the body lacks blood clotting proteins. Each year, about 400 children with hemophilia are born. At Children's Hospital Boston, the Boston Hemophilia Center will provide hemophilia support through a comprehensive care model.” View full resource at childrenshospital.org
Most Recently Shared on March 17, 2012 at 7:30 pm By:
Children's Hospital Hospital and Children's Hospital
Did you know? There are 18,000 people living with hemophilia in the United States. More facts: http://t.co/3kZaYBeg
Pediatric Hemophilia - Symptoms, Tests, Treatment
childrenshospital.org — “Hemophilia is a blood clotting problem in which a simple cut can cause uncontrollable bleeding because the body lacks blood clotting proteins. Each year, about 400 children with hemophilia are born. At Children's Hospital Boston, the Boston Hemophilia Center will provide hemophilia support through a comprehensive care model.” View full resource at childrenshospital.org
Most Recently Shared on March 12, 2012 at 7:30 pm By:
Children's Hospital Hospital and Children's Hospital
Each year, about 400 children are born with hemophilia. Do you know what it is? http://t.co/N6gQxcoW
CSL Behring Marks World Hemophilia Day With Factor IX Donation To World Federation Of Hemophilia
medicalnewstoday.com — “Hemophilia B patients in the developing world will benefit from a recent donation of 1 million international units (IU) of factor IX medication made by CSL Behring to the World Federation of Hemop” View full resource at medicalnewstoday.com
Most Recently Shared on April 17, 2010 at 1:05 pm By:
CSL Behring Marks World Hemophilia Day With Factor IX Donation To World Federation Of Hemophilia http://mnt.to/3Bpr #blood #hematology
CSL Behring supports World Federation of Hemophilia with 1 million IUs of von Willebrand factor/Factor VIII
news-medical.net — “CSL Behring has donated more than 1 million international units (IU) of von Willebrand factor (VWF)/Factor VIII (FVIII) replacement medication to patients through the World Federation of Hemophilia (WFH). The donation supports WFH's progress in improving the diagnosis and treatment of bleeding disorders in developing countries through its Global Alliance for Progress (GAP) program.” View full resource at news-medical.net
Most Recently Shared on July 18, 2011 at 1:44 pm By:
CSL Behring supports World Federation of Hemophilia with 1 million IUs of von Willebrand factor/Factor VIII: CSL... http://bit.ly/pMgKlJ
New Baxter-Sponsored WFH Video Launched To Spur A Global Dialogue On Improving Access To Hemophilia Care And Treatment
medicalnewstoday.com — “Baxter International Inc., in its continued support of the World Federation of Hemophilia (WFH), announced the launch of the Our Lives with Hemophilia: The Stories of Vaibhav and Paul video pod” View full resource at medicalnewstoday.com
Most Recently Shared on July 13, 2010 at 6:04 pm By:
New Baxter-Sponsored WFH Video Launched To Spur A Global Dialogue On Improving Access To Hemophilia Care And Treatment http://mnt.to/3G3w
Hemophilia and Von Willebrand disease - In-Depth - Children's Hospital Boston
childrenshospital.org — “Hemophilia is a blood clotting problem in which a simple cut can cause uncontrollable bleeding because the body lacks blood clotting proteins. Each year, about 400 children with hemophilia are born. At Children's Hospital Boston, the Boston Hemophilia Center will provide hemophilia support through a comprehensive care model.” View full resource at childrenshospital.org
Most Recently Shared on March 16, 2012 at 7:30 pm By:
Children's Hospital Hospital and Children's Hospital
Besides prolonged bleeding, do you know the other symptoms of hemophilia? http://t.co/DuIhhevk
Hemophilia and Von Willebrand disease - Research & Innovation - Children's Hospital Boston
childrenshospital.org — “Hemophilia is a blood clotting problem in which a simple cut can cause uncontrollable bleeding because the body lacks blood clotting proteins. Each year, about 400 children with hemophilia are born. At Children's Hospital Boston, the Boston Hemophilia Center will provide hemophilia support through a comprehensive care model.” View full resource at childrenshospital.org
Most Recently Shared on March 15, 2012 at 7:30 pm By:
Children's Hospital Hospital and Children's Hospital
Read about our clinical research trials available for children with hemophilia: http://t.co/D9tCinyd
Hemophilia and Von Willebrand disease - Treatment & Care - Children's Hospital Boston
childrenshospital.org — “Hemophilia is a blood clotting problem in which a simple cut can cause uncontrollable bleeding because the body lacks blood clotting proteins. Each year, about 400 children with hemophilia are born. At Children's Hospital Boston, the Boston Hemophilia Center will provide hemophilia support through a comprehensive care model.” View full resource at childrenshospital.org
Most Recently Shared on March 13, 2012 at 7:30 pm By:
Children's Hospital Hospital and Children's Hospital
If your child has hemophilia, here are some ways you can help protect their health: http://t.co/kEHC5GR8
Spoonful of Medicine: A whole clot of hope for new hemophilia therapies
blogs.nature.com — “People with hemophilia have a lot of reasons to be hopeful these days. A December gene therapy study showed early success, and yesterday the Dublin-based pharmaceutical company Shire announced a partnership with the Richmond, California-based biotech Sangamo BioSciences. Together, the companies plan to develop hemophilia treatments that target defects in four clotting factor genes with the zinc finger DNA-binding protein technology developed by Sangamo. Shire will provide financial support to br” View full resource at blogs.nature.com
Most Recently Shared on February 2, 2012 at 8:10 pm By:
Nature Medicine Science Enthusiast
A whole clot of hope for new hemophilia therapies http://t.co/esCGkKol
Baxter U.S.: World Hemophilia Day: Baxter Helping to Close the Gap in Treatment Around the Globe
baxter.com — “World Kidney Day Focuses on Transplantation - The Important Role Dialysis Can Play in Treatment Success” View full resource at baxter.com
Most Recently Shared on April 10, 2012 at 8:08 pm By:
World Hemophilia Day: Baxter Helping to Close the Gap in Treatment Around the Globe. http://t.co/s8aSF67O
Barb Dittrich - Hemophilia and other Rare Diseases 12/15 by The Coffee Klatch | Blog Talk Radio
blogtalkradio.com — “Join us as we discuss the group of bleeding disorders involved in Hemophilia. The difficulty in finding resources for this and other rare diseases Dec 15” View full resource at blogtalkradio.com
Most Recently Shared on December 16, 2010 at 3:23 pm By:
SNAPPIN' MINISTRIES Patient Advocate
Don't think this is my best radio interview, but I'm sharing it in honor of #Hemophilia Awareness Month: http://tinyurl.com/4rwvwwm #tck
Barb Dittrich - Hemophilia and other Rare Diseases 12/15/2010 - The Coffee Klatch | Internet Radio | Blog Talk Radio
blogtalkradio.com — “Join us as we discuss the group of bleeding disorders involved in Hemophilia. The difficulty in finding resources for this and other rare diseases Dec 15 2010” View full resource at blogtalkradio.com
Most Recently Shared on December 16, 2010 at 2:02 am By:
The Coffee Klatch Parenting Supporter
Listen live in 15 minutes to Barb Dittrich - Hemophilia and other Rare D... on The Coffee Klatch. http://tobtr.com/s/1419702. #BlogTalkRadio
MHA Federalist: Patient Groups: Senate Bill Doesn't Eliminate Insurance Cap
mhanewsnow.typepad.com — “More than 60 groups representing individuals with chronic conditions, orphan diseases, and other medical conditions"including the National Organization for Rare Disorders, the Hemophilia Federation of America, and the National Multiple Sclerosis Society"wrote in a letter to Congress that the Senate healthcare reform bill does not really eliminate annual and lifetime insurance caps. The groups are supporting adoption of the House bill instead because the legislation would eliminate caps. Read mor” View full resource at mhanewsnow.typepad.com
Most Recently Shared on January 20, 2010 at 4:33 pm By:
MS Hospital Assoc. Health Organization
Patient Groups: Senate Bill Doesn't Eliminate Insurance Cap http://bit.ly/4OiTvf
Support Groups
health.einnews.com — “Support Groups” View full resource at health.einnews.com
Most Recently Shared on May 21, 2009 at 5:36 pm By:
Support Groups http://tinyurl.com/rcvub9
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The official Twitter page for Children's Hospital Boston - providing you with all of our latest news and information
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