Genetic Testing and Marfan Syndrome

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Marfan syndrome - Tests - Children's Hospital Boston

childrenshospital.org — “Marfan syndrome is a genetic disorder that causes connective tissues?which provide substance, shape and support to many parts of the body?to be weaker than they should be. Marfan often weakens the aorta (the blood vessel that carries blood away from the heart to the body), creating the risk of an aortic tear, leak or aneurysm.View full resource at childrenshospital.org

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Most Recently Shared on January 13, 2012 at 7:30 pm By:

ChildrensBoston Children's Hospital Hospital and Children's Hospital

Symptoms of Marfan syndrome don’t usually appear until a child reaches the teen years or even young adulthood: http://t.co/tHCSzPhQ

4 months ago...

Marfan Syndrome -- A Frequently Undiagnosed Genetic Disorder

medicalnewstoday.com — “Did you know approximately 200,000 Americans have Marfan syndrome or a related disorder, yet experts say that about half of those are not diagnosed? The National Marfan Foundation is committed toView full resource at medicalnewstoday.com

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Most Recently Shared on December 16, 2010 at 5:05 pm By:

mnt_genetics MNT Genetics News Health News

Marfan Syndrome -- A Frequently Undiagnosed Genetic Disorder http://mnt.to/3P8r #genetics

1 year ago...

Marfan Syndrome | Medicues

medicues.com — “' Marfan Syndrome is a genetic disorder affecting the formation of the protein fibrillin. ' Overview Marfan Syndrome is common and affects 1 in 5000View full resource at medicues.com

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Most Recently Shared on May 4, 2010 at 1:42 pm By:

medicueshealth health-talk.com Health News

Marfan Syndrome: · Marfan Syndrome is a genetic disorder affecting the formation of the protein fi... http://bit.ly/deFe7Z www.medicues.com

2 years ago...

My WebMD: Living with Marfan Syndrome

webmd.com — “Though she was told she shouldn't have children because she has a genetic disorder that affects her connective tissue, Maya Brown-Zimmerman gave birth to two. Here's how she is adapting.View full resource at webmd.com

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Most Recently Shared on March 9, 2012 at 8:52 pm By:

What is Marfan Syndrome? | Video | abc13.com

abclocal.go.com — “The genetic disorder doesn't only affect your appearance, but it also could lead to lethal heart problemsView full resource at abclocal.go.com

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Most Recently Shared on July 15, 2010 at 2:50 pm By:

UTHouston UTHealth Medical School and Healthcare System

What is Marfan Syndrome? Dr. Dianna Milewicz, director of medical genetics at the medical school, explains: http://bit.ly/dkrQSw

2 years ago...

Marfan syndrome - Treatment & Care - Children's Hospital Boston

childrenshospital.org — “Marfan syndrome is a genetic disorder that causes connective tissues?which provide substance, shape and support to many parts of the body?to be weaker than they should be. Marfan often weakens the aorta (the blood vessel that carries blood away from the heart to the body), creating the risk of an aortic tear, leak or aneurysm.View full resource at childrenshospital.org

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Most Recently Shared on January 10, 2012 at 7:30 pm By:

ChildrensBoston Children's Hospital Hospital and Children's Hospital

The most serious heart problem linked to Marfan syndrome is aortic dilation—the aorta enlarges & weakens: http://t.co/LJljZMyT

5 months ago...

Marfan syndrome - Treatment & Care - Children's Hospital Boston

childrenshospital.org — “Marfan syndrome is a genetic disorder that causes connective tissues?which provide substance, shape and support to many parts of the body?to be weaker than they should be. Marfan often weakens the aorta (the blood vessel that carries blood away from the heart to the body), creating the risk of an aortic tear, leak or aneurysm.View full resource at childrenshospital.org

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Most Recently Shared on January 14, 2012 at 7:30 pm By:

ChildrensBoston Children's Hospital Hospital and Children's Hospital

Some kids who have Marfan syndrome need surgery to repair a chest that sinks in (concave) or sticks out (convex): http://t.co/nlzjqODf

4 months ago...

Marfan's syndrome is a genetic (inherited) disorder that affects the body's connective tissue. Learn more.

intelihealth.com — “Marfan's syndrome is a genetic (inherited) disorder that affects the body's connective tissue. Learn more.View full resource at intelihealth.com

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Most Recently Shared on June 9, 2010 at 12:19 pm By:

Health_SS Susan S Health Advocate

Marfan's syndrome is a genetic (inherited) disorder that affects the body's connective tissue. Learn more. http://bit.ly/azKdvp

2 years ago...

Families Seek Answers About Marfan Syndrome At Annual Conference

medicalnewstoday.com — “The night after her 11-year-old daughter was fitted with her back brace to correct scoliosis, Peggy Maderer Henderson went into her bedroom, closed the door and burst into tears.It wasn'tView full resource at medicalnewstoday.com

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Most Recently Shared on July 2, 2010 at 2:06 pm By:

mnt_conferences MNT Med Conferences Health News

Families Seek Answers About Marfan Syndrome At Annual Conference http://mnt.to/3FFk #medicalconferences

2 years ago...

Marfan syndrome - Clinical Health Topics - Children's Hospital Boston

childrenshospital.org — “Marfan syndrome is a genetic disorder that causes connective tissues?which provide substance, shape and support to many parts of the body?to be weaker than they should be. Marfan often weakens the aorta (the blood vessel that carries blood away from the heart to the body), creating the risk of an aortic tear, leak or aneurysm.View full resource at childrenshospital.org

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Most Recently Shared on January 9, 2012 at 7:30 pm By:

ChildrensBoston Children's Hospital Hospital and Children's Hospital

Marfan syndrome is a genetic disorder that causes the body’s connective tissues to be weaker than normal: http://t.co/FEKqWgVa

5 months ago...

Marfan syndrome - In-Depth - Children's Hospital Boston

childrenshospital.org — “Marfan syndrome is a genetic disorder that causes connective tissues?which provide substance, shape and support to many parts of the body?to be weaker than they should be. Marfan often weakens the aorta (the blood vessel that carries blood away from the heart to the body), creating the risk of an aortic tear, leak or aneurysm.View full resource at childrenshospital.org

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Most Recently Shared on January 11, 2012 at 7:30 pm By:

ChildrensBoston Children's Hospital Hospital and Children's Hospital

Marfan syndrome is inherited; in about 75% of cases, the defective gene is passed down from parent to child: http://t.co/LRk3OYy3

4 months ago...

Marfan syndrome - Clinical Health Topics - Children's Hospital Boston

childrenshospital.org — “Marfan syndrome is a genetic disorder that causes connective tissues?which provide substance, shape and support to many parts of the body?to be weaker than they should be. Marfan often weakens the aorta (the blood vessel that carries blood away from the heart to the body), creating the risk of an aortic tear, leak or aneurysm.View full resource at childrenshospital.org

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Most Recently Shared on January 12, 2012 at 7:30 pm By:

ChildrensBoston Children's Hospital Hospital and Children's Hospital

Marfan syndrome can weaken a child’s heart, blood vessels, lungs, bones, joints, eyes & skin: http://t.co/Gn7Me1oD

4 months ago...

New clues about how to prevent aortic aneurysm in patients with Marfan syndrome

sciencedaily.com — “Scientists whose laboratory studies first suggested that an FDA-approved drug, losartan, might prevent the potentially deadly enlargement of the aorta caused by Marfan syndrome now have an even clearer picture of the cellular signals that contribute to the disease. While a clinical trial testing losartan's ability to slow progression of aneurysm in people with Marfan syndrome continues, ongoing research is generating data that will help guide treatment decisions and inform efforts to develop altView full resource at sciencedaily.com

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Most Recently Shared on April 14, 2011 at 7:11 pm By:

medical_tweets medical_tweets Health News

New clues about how to prevent aortic aneurysm in patients with Marfan syndrome: HHMI scientists whose laboratory studi.. http://dld.bz/W7Mn

1 year ago...

New clues about how to prevent aortic aneurysm in patients with Marfan syndrome

sciencedaily.com — “Scientists whose laboratory studies first suggested that an FDA-approved drug, losartan, might prevent the potentially deadly enlargement of the aorta caused by Marfan syndrome now have an even clearer picture of the cellular signals that contribute to the disease. While a clinical trial testing losartan's ability to slow progression of aneurysm in people with Marfan syndrome continues, ongoing research is generating data that will help guide treatment decisions and inform efforts to develop altView full resource at sciencedaily.com

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Most Recently Shared on April 14, 2011 at 7:15 pm By:

sciencedaily sciencedaily Health News

New clues about how to prevent aortic aneurysm in patients with Marfan syndrome: HHMI scientists whose lab... http://tinyurl.com/3ucfns3

1 year ago...

New clues about how to prevent aortic aneurysm in patients with Marfan syndrome

sciencedaily.com — “Scientists whose laboratory studies first suggested that an FDA-approved drug, losartan, might prevent the potentially deadly enlargement of the aorta caused by Marfan syndrome now have an even clearer picture of the cellular signals that contribute to the disease. While a clinical trial testing losartan's ability to slow progression of aneurysm in people with Marfan syndrome continues, ongoing research is generating data that will help guide treatment decisions and inform efforts to develop altView full resource at sciencedaily.com

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Most Recently Shared on April 15, 2011 at 3:23 pm By:

napernurse Dawn McKinney, MS/RN Nurse

New clues about how to prevent aortic aneurysm in patients with #Marfan syndrome http://t.co/SSVbimg via @AddThis #ENDO #research

1 year ago...

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