Edwards Syndrome Support Groups
Links shared publicly online about this topic
Support Groups
tsa-illinois.org — “Support Groups” View full resource at tsa-illinois.org
Most Recently Shared on April 13, 2011 at 7:28 pm By:
Tourette Syndrome IL Health Organization
Tourette Syndrome IL Support Group in Deerfield 7:00 pm featuring Jennifer Calliss JOIN US! http://www.tsa-illinois.org/Support_Groups.php
Support Groups
tsa-illinois.org — “Support Groups” View full resource at tsa-illinois.org
Most Recently Shared on July 11, 2011 at 4:12 am By:
Tourette Syndrome IL Health Organization
Tourette Syndrome Association Chicago Community Group Mtg, Mon, 7/18 Open to all with TS, RSVP please! For more details http://t.co/Z4NWIaD
GBS Support Group - Quickguide
gbs.org.uk — “GBS Support Group - Quickguide” View full resource at gbs.org.uk
Most Recently Shared on August 11, 2011 at 4:31 pm By:
Eagle Syndrome - Online Support Group - We are patients living with Eagle syndrome, here for your support.
livingwitheagle.org — “We are patients living with Eagle syndrome, here for your support.” View full resource at livingwitheagle.org
Most Recently Shared on November 23, 2011 at 7:37 pm By:
Ben Munoz - Ben's Friends Support
We are patients living with Eagle syndrome, here for your support. @bensfriends http://t.co/BSPWUine #bensfriends #payitforward
Fibromyalgia/CFIDS Support Groups
fmscommunity.org — “Fibromyalgia/CFIDS Support Groups” View full resource at fmscommunity.org
Most Recently Shared on April 16, 2009 at 1:33 pm By:
Living with FM, CMP, CFIDS, Gulf War Syndrome or any overlapping condition? Find a support Group; http://www.fmscommunity.org/sptgrp.htm
Ben's Friends — Eagle Syndrome - Online Support Group
blog.bensfriends.org — “Eagle Syndrome - Online Support Group New Member says, “Thanks for the welcome. I was somewhat surprised to find this network, happily surprised of course. It touched my heart too. :)” Eagle Syndrome...” View full resource at blog.bensfriends.org
Most Recently Shared on December 26, 2011 at 7:01 am By:
Ben Munoz - Ben's Friends Support
Eagle Syndrome - Online Support Group - New Member says, “Thanks for the welcome. I was somewhat surprised... http://t.co/v5Iuz6Lt
Ben's Friends — Eagle Syndrome - Online Support Group
blog.bensfriends.org — “Eagle Syndrome - Online Support Group New member says: ” Thanks ! I’m just hoping to gather as much info as possible! i had NEVER heard of this condition until after a month of painful throat...” View full resource at blog.bensfriends.org
Most Recently Shared on January 26, 2012 at 1:57 pm By:
Ben Munoz - Ben's Friends Support
Eagle Syndrome - Online Support Group - New member says: ” Thanks ! http://t.co/EtN5VD69 #bensfriends #raredisease
FibroAction - Raising Awareness of Fibromyalgia Syndrome in the UK - Support Groups
fibroaction.org — “FibroAction - Raising Awareness of Fibromyalgia Syndrome in the UK - Support Groups” View full resource at fibroaction.org
Most Recently Shared on July 27, 2010 at 10:17 am By:
FibroAction Health Organization
Do you know a UK #fibro support grp that's not on our list? Let them know about the free publicity opportunity! http://bit.ly/cvnDDI
UCSF's support group for parents of intersex kids
sfgate.com — “Jeanne Nollman was a later bloomer. She waited and waited for puberty to hit, and when she was 17 and still nothing had happened, she got tested - and found out she had a rare condition called Swyer syndrome and would...” View full resource at sfgate.com
Most Recently Shared on May 21, 2011 at 4:58 pm By:
P. Mimi Poinsett MD Doctor, Pediatrician, and Physician
UCSF's support group for parents of intersex kids http://t.co/jjAfInh via @sfgate
UCSF's support group for parents of intersex kids
sfgate.com — “Jeanne Nollman was a later bloomer. She waited and waited for puberty to hit, and when she was 17 and still nothing had happened, she got tested - and found out she had a rare condition called Swyer syndrome and would...” View full resource at sfgate.com
Most Recently Shared on May 9, 2011 at 2:33 pm By:
Interesting story about new UCSF support group for parents of intersex kids: http://bit.ly/kR9ECU
Well Sibling Support Group? - TuDiabetes
tudiabetes.org — “Hi, Everyone~I was wondering if anyone participates in a Well Sibling Support group at their local Diabetes Clinic? I've been reading about Healthy Child Syndrome and speaking with my DD's Endo to see if it's possible to start one at our Institute. If so, would you mind to outline what takes place in a support group for the siblings of Diabetic kids? I would also be interested in any other resources or info that would be helpful in starting one. Thanks so much! Jessica” View full resource at tudiabetes.org
Most Recently Shared on August 3, 2010 at 12:37 am By:
Children #diabetes: Well Sibling Support Group?: Hi, Everyone~I was wondering if anyone participates in a Well Sib... http://bit.ly/bWC1xs
Moms of the chromosomal disorder Edwards syndrome children like Caleb Adamyk bond in Ocala | Ocala.com
ocala.com — “While most kids count the days until their next birthday, little Caleb Adamyk has settled for counting years. Diagnosed with Edwards syndrome, a debilitating chromosomal disorder, Caleb will turn 2 on Sunday. That's a huge milestone for a child who wasn't expected to live past birth.” View full resource at ocala.com
Most Recently Shared on March 19, 2011 at 1:14 pm By:
Caleb turning 2 amid support for Edwards syndrome kids http://bit.ly/dLuGlg
The Day - Westerly Hospital creates a post polio syndrome support group | News from southeastern Connecticut
theday.com — “The Day - Westerly Hospital creates a post polio syndrome support group | News from southeastern Connecticut” View full resource at theday.com
Most Recently Shared on August 29, 2010 at 11:26 am By:
Westerly Hospital creates a post polio syndrome support group: About 15 years ago, when he was in his mid- 40s, Wi... http://bit.ly/bn8UIK
FibroAction - Raising Awareness of Fibromyalgia Syndrome in the UK - Support Group Directory updated again
fibroaction.org — “FibroAction - Raising Awareness of Fibromyalgia Syndrome in the UK - Support Group Directory updated again” View full resource at fibroaction.org
Most Recently Shared on February 24, 2010 at 7:21 pm By:
FibroAction Health Organization
On FibroAction: Support Group Directory updated again: The FibroAction website Support Group Directory has r... http://bit.ly/dvXlFB #fibro
FibroAction - Raising Awareness of Fibromyalgia Syndrome in the UK - Directory of UK Fibro Support Groups updated
fibroaction.org — “FibroAction - Raising Awareness of Fibromyalgia Syndrome in the UK - Directory of UK Fibro Support Groups updated” View full resource at fibroaction.org
Most Recently Shared on April 7, 2010 at 3:36 pm By:
FibroAction Health Organization
On FibroAction: Directory of UK Fibro Support Groups updated: The FibroAction website Support Group Director... http://bit.ly/b2hr3G #fibro
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Tourette Syndrome IL
TSA-IL's mission is to serve and support those whose lives are affected by Tourette Syndrome. See our website for a full description of the services we provide.
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Tourette Syndrome IL
TSA-IL's mission is to serve and support those whose lives are affected by Tourette Syndrome. See our website for a full description of the services we provide.
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Michael Whitehead - STNNurse_Mikey
If you treat the disease you win and you lose, but if you treat the person I guarantee you'll win every time. Auxiliary Nurse - Studying Paediatric Nursing at one of the best nursing schools in the country _ Southampton University. Feel free to get in touch, via twitter or facebook!
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