Cystic Fibrosis Support Groups

Links shared publicly online about this topic

Cystic Fibrosis Foundation

cff.org — “Cystic Fibrosis FoundationView full resource at cff.org

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Most Recently Shared on March 20, 2011 at 3:03 am By:

vtangpricha Dr. Vin Tangpricha Doctor, Internist, Endocrinologist, and Physician

Support Cystic Fibrosis by supporting the CF team Atlanta in the 2011 Great Strides fund raiser walk http://bit.ly/g2WUmE

1 year ago...

Cystic Fibrosis on #MDlinx

mdlinx.com — “Cystic Fibrosis on #MDlinxView full resource at mdlinx.com

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Most Recently Shared on October 15, 2010 at 3:41 pm By:

MDLinx Sandeep Pulim MD Doctor, Health Communicator, and Physician

Parental support for newborn screening for cystic fibrosis: Acta Pediatrica http://bit.ly/bZdAJy #peds

2 years ago...

Cystic Fibrosis Surf Experience Day

santacruzwaves.com — “Santa Cruz WavesView full resource at santacruzwaves.com

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Most Recently Shared on May 4, 2011 at 7:27 pm By:

Infectious Dis. Medical News about Cystic Fibrosis

mdlinx.com — “McKay agar enables routine quantification of the 'Streptococcus milleri' group in cystic fibrosis patientsView full resource at mdlinx.com

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Most Recently Shared on April 19, 2010 at 11:19 am By:

MDLinx Sandeep Pulim MD Doctor, Health Communicator, and Physician

McKay agar enables routine quantification of the 'Streptococcus milleri' group in cystic fibrosis patients: Jou... http://bit.ly/ach9pj #ID

2 years ago...

Cystic Fibrosis Foundation - Great Strides National Walk Event

cff.org — “Great Strides is the national walk event of the Cystic Fibrosis FoundationView full resource at cff.org

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Most Recently Shared on May 16, 2011 at 8:52 pm By:

HopkinsKids Hopkins Children's Children's Hospital and Hospital

You can support members of our cystic fibrosis center who walk Tuesday night in Baltimore for a cure http://fb.me/Q8Xfsw86

1 year ago...

PTC Therapeutics Awarded $1.6 Million FDA Orphan Drug Grant To Support An Ongoing Phase 3 Study In Cystic Fibrosis

medicalnewstoday.com — “PTC Therapeutics, Inc. (PTC) announced a grant award of approximately $1.6 million from the U.S. Food and Drug Administration (FDA) Office of Orphan Products Development (OPD) to support an ongoiView full resource at medicalnewstoday.com

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Most Recently Shared on September 22, 2010 at 4:05 pm By:

mnt_cysticfibro MNT Cystic Fibrosis Health News

PTC Therapeutics Awarded $1.6 Million FDA Orphan Drug Grant To Support An Ongoing Phase 3 Study In Cystic Fibrosis http://mnt.to/3K8Z

2 years ago...

Cystic Fibrosis Foundation - Great Strides National Walk Event

cff.org — “Great Strides is the national walk event of the Cystic Fibrosis FoundationView full resource at cff.org

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Most Recently Shared on May 1, 2011 at 10:26 pm By:

The Pulmozyme (dornase alfa) Community: A Cystic Fibrosis Network and Resource

pulmozyme.com — “Pulmozyme (dornase alfa) - Welcome to the Pulmozyme patient community! You'll be able to learn a range of practicle information and share your experiences with others affected by Cystic Fibrosis. Our resources are scaled to your age group so you can find exactly what you need.View full resource at pulmozyme.com

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Most Recently Shared on February 19, 2010 at 1:12 pm By:

skypen Fabio Gratton Health Social Media and Health Executive

@Berci - Always loved efforts in Cystic Fibrosis by Novartis http://bit.ly/9kKuOJ & Genentech: http://bit.ly/a13ekt Anything sim. in Asthma?

2 years ago...

Cystic Fibrosis Foundation Launches National Cycling Series To Benefit Critical Research And Care

medicalnewstoday.com — “Thousands of cyclists will take to the streets this summer and fall as the Cystic Fibrosis Foundation launches a new cycling tour in 18 cities across the country to support research to find new thView full resource at medicalnewstoday.com

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Most Recently Shared on May 5, 2010 at 7:21 am By:

mnt_cysticfibro MNT Cystic Fibrosis Health News

Cystic Fibrosis Foundation Launches National Cycling Series To Benefit Critical Research And Care http://mnt.to/3C7Z #cysticfibrosis

2 years ago...

New Drug May Treat Cystic Fibrosis, Other Diseases Caused By 'Nonsense Mutations'

medicalnewstoday.com — “Inherited diseases such as cystic fibrosis can be caused by genetic nonsense mutations that disrupt the way human cells make proteins. David Bedwell, Ph.D., a professor in the University of AlabView full resource at medicalnewstoday.com

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Most Recently Shared on April 27, 2010 at 12:24 pm By:

mnt_cysticfibro MNT Cystic Fibrosis Health News

New Drug May Treat Cystic Fibrosis, Other Diseases Caused By 'Nonsense Mutations' http://mnt.to/3BLh #cysticfibrosis

2 years ago...

HEALTHBEAT: Small but growing group of cystic fibrosis survivors over 40 offers clues for care | StarTribune.com

startribune.com — “HEALTHBEAT: Small but growing group of cystic fibrosis survivors over 40 offers clues for care | StarTribune.comView full resource at startribune.com

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Most Recently Shared on June 21, 2010 at 8:35 pm By:

Health_SS Susan S Health Advocate

HEALTHBEAT: Small but growing group of cystic fibrosis survivors over 40 offers clues for care: http://bit.ly/cO7IDd

2 years ago...

Discovery Labs Announces Presentation & Key Results of Phase 2a Study of Aerosolized KL4 Surfactant in Cystic Fibrosis at the North American Cystic Fibrosis Conference - Drugs.com MedNews

drugs.com — “Discovery Laboratories, Inc. (Nasdaq DSCO) today announces that the Phase 2a clinical study of aerosolized KL4 surfactant (lucinactant) in patients with cysticView full resource at drugs.com

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Most Recently Shared on October 22, 2010 at 9:16 pm By:

Drugs_Devices Drugs and Devices OW OW Health

Discovery Labs Announces Presentation & Key Results of Phase 2a Study of Aerosolized KL4 Surfactant in Cystic... http://bit.ly/dxNulJ #drug

2 years ago...

New England Journal Of Medicine Publishes Phase 2 Study Of VX-770 As A New Approach To Treat The Underlying Cause Of Cystic Fibrosis

medicalnewstoday.com — “In a study published in this week's New England Journal of Medicine, treatment with a new drug candidate known as VX-770 resulted in improvements in lung function and markers of disease in a PhaseView full resource at medicalnewstoday.com

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Most Recently Shared on November 20, 2010 at 4:05 pm By:

mnt_cysticfibro MNT Cystic Fibrosis Health News

New England Journal Of Medicine Publishes Phase 2 Study Of VX-770 As A New Approach To Treat The Underlying Cause Of C... http://mnt.to/3MXX

2 years ago...

Ivacaftor proven effective for children, adults with cystic fibrosis - Related Stories - AAP SmartBrief

smartbrief.com — “The change in the percent of predicted forced expiratory volume in one second for patients ages 12 and older with cystic fibrosis was significantly higher, by 10.6%, in the group receiving ivacaftor compared with the placebo group, according to a study in the New England Journal of Medicine. "Ivaca…View full resource at smartbrief.com

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Most Recently Shared on November 3, 2011 at 5:42 pm By:

songMD Clara Song Pediatrician, Physician, and Doctor

Ivacaftor proven effective for children, adults with cystic fibrosis http://t.co/n4z2rAGm

7 months ago...

Inspire crushed by failed cystic fibrosis study - MarketWatch

marketwatch.com — “BOSTON (MarketWatch) -- Inspire Pharmaceuticals shares were crushed in premarket trading Monday after the biotech group reported that a Phase III clinical trial for its drug denufosol failed to show it was effective in treating cystic fibrosis. Inspire shares were down nearly 60% at $3.47. Inspire said it plans to analyze the data to determine if it will proceed with further develop the product. The company intends to issue a full corporate update in mid-February.View full resource at marketwatch.com

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Most Recently Shared on January 3, 2011 at 2:20 pm By:

SciTri ScienceintheTriangle Science Enthusiast

Inspire's CF drug fails late-stage clinical trial, shares drop 60% in premarket trading. http://bit.ly/gzggH3 and http://bit.ly/gjFOHE #SITT

1 year ago...

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